CampaignChampions for Childhood Epilepsy Campaign
Around 60,000 young people under 18 have epilepsy in the UK - half are estimated to be under-achieving in school.
Epilepsy in childhood is as common as insulin dependent diabetes.
On average there is one child with epilepsy in every primary school and five in every secondary school.
There is a misdiagnosis rate of up to 40%.
It is estimated that at least 400 lives a year would be saved if the NICE clinical guidelines of 2004 were properly implemented.
About a quarter of all those known to UK learning disability services have epilepsy.
70% of young people experiencing seizures could be seizure free, yet only 28% are.
The National Centre for Young People with Epilepsy (NCYPE) is running a national campaign to improve the lives of children and young people in the UK with epilepsy.
The Champions for Childhood Epilepsy Campaign builds on the NCYPE’s wealth of knowledge and expertise to promote better services and understanding for young people with epilepsy.
The NCYPE’s Childhood Epilepsy Information Service is already providing professional, high quality information to parents, families, carers and professionals across the UK.
Now the Champions for Childhood Epilepsy Campaign will press for improvements to education, health and other services for the estimated 60,000 children and young people living with epilepsy right across the UK.
By working with all our partners, providing training, guidance and support; working directly with a range of organisations and service providers at all levels and lobbying those in charge to ensure the right policies are in place we know we can really make a difference.
You may have knowledge and experience helpful to our campaigning work so over the coming weeks and months I will be asking for your involvement. In the meantime, if you would like to be kept up to date with our latest activity please email me at This e-mail address is being protected from spambots. You need JavaScript enabled to view it and I will be happy to keep you informed. Alternatively, to read the latest news you can simply click on one of our most recent Champions for Childhood Epilepsy Campaign Up-dates below this letter.
Champions for Childhood Epilepsy Campaign- Improving Services for Young People (551 KB)
Alison Cornell
Campaigns Coordinator
Campaign Updates
January & February '10 (350 KB)
November '09 (350 KB)
December '09 (350 KB)