Health Action Plan

The Government knows that epilepsy services need to be improved: the Health Minister, Ann Keen, confirmed this in 2009 when she said, “I agree that services are still not good enough”. Through the campaign, and by working with a range of health organisations, the NCYPE will be pressing health commissioners and other NHS organisations to use the following ten ‘levers’ which will improve services for children with epilepsy:

NHS commissioners must KNOW:

• The number of children and young people with epilepsy in their area;
• The level of resources they have in place to support these children and young people;
• Waiting times faced by children and young people with epilepsy – for initial appointments, for diagnosis, for treatment, and for tertiary assessment;
• The current perceptions of children, young people and their parents of the epilepsy services.

NHS commissioners must ADOPT:

• One or more care pathways for children and young people with epilepsy, ensuring that they are seen by paediatricians with training and expertise in the epilepsies;
• An easy to use and efficient process for referring children and young people to specialist epilepsy services;

NHS commissioners must ENSURE:

• Every child or young person with epilepsy is offered a care plan, and that there is a high adoption rate;
• Every child or young person with epilepsy has their case reviewed at least once a year by a health professional with expertise and training in the epilepsies;
• Children, young people and their parents/carers have easy access to high quality information and advice material about epilepsy;
• Children and young people have easy access to high quality multi-disciplinary services such as speech and language therapy and psychology.

Seminar 25 March

Join our seminar on 25 March aimed at improving paediatric epilepsy services in the South East of England. For more information, or to book a place, please see the PDF below or contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Summit Invitation Letter (78KB)